Bills & Legislation We Have Advocated For
Race for Children’s Act
The Race for Children’s Act promotes research and drug development for pediatric cancer. It was passed unanimously in the house of representatives in 2017.
STAR stands for survivorship, treatment, access, and research. It addressed some of the major issues facing the childhood cancer community especially regarding quality of life and research.
The Reauthorization of Creating Hope Act
The Creating the Hope Act was originally passed in 2012. Since pediatric drug development is not “profitable”, for drug companies, it created vouchers to incentivize and award companies that do. It passed again in 2019 and will have to be reauthorized again in 2024.
Gabriella Miller Kid’s First Research Act 2.0
Gabriella Miller Kids First Research Act 2.0 was originally signed into law in 2014. It takes nontaxpayer, penalties collected when pharmaceutical, cosmetic, supplement and medical device companies breawk the foreign corrupt practices act and redirects them to critical rare pediatric disease research. (We like to say its making beauty from ashes.)
H. Res 114 (Moonshot4Kids)
Moonshot4Kids is the national dipg awareness resolution with the goal to make may 17th “DIPG Awareness Day” to praise greater awareness for childhood brain cancer and to encourage research into cures for pediatric cancers in general.
Leia’s Kids has participated in several events with President Biden’s “Cancer Moonshot Initiative.” Our executive director, Leia, was personally invited to the White House for the Childhood Cancer Forum in September in 2022 and 2023.
Additionally, other awareness initiatives have included local and state proclamations. In 2022 and 2023, Leia’s Kids secured city “Childhood Cancer Awareness Month” declarations in Washington D.C. Mckinney, TX, Frisco, TX, and Allen, TX.